Our little boy

Our little boy
Our Little Miracle

Thursday, October 28, 2010

Pounds of flesh

He weighs 3 pounds............officially!

Julie just got back and had a great day with him. They are talking about taking him off the C-pap again tomorrow completely to see how he does and he is now above 3 pounds. To put that in perspective, he has almost doubled his weight in less than 6 weeks. Seems like he takes after his Dad in that department ha ha.

So here are the photos I promised, enjoy!

Here is the first of a series we will call "Halloween fashion show"
In the fist offering, we see the baby boy clad in a wonderful fall orange piece with a print of a Jack-O-Lantern. This is for those crisp nights trick or treating through the NICU where the tiled floors can get a touch chilly. Don't forget your pillow case little man, there is candy to be had!

The blue "I Love My Mummy" top that little man is sporting here is a functional frock that says "look at me, I can coordinate with the C-pap. Accessories make the outfit and he has accessorized perfectly with this wonderful top.
Though this bib could function as a complete ensemble for him, this "Love My Mummy" bib is fashionable and functional. Drool and food is no match for this piece. The accent color, again, shows fun use of the C-pap colors to enhance the lines of this fantastic fashion, nay, artsy look. Happy Halloween!
He sure is getting curious with his eyes. Soon he will be watching..........and that is scary to think ha ha.
While he looks like he may be wailing here, this is a yawn.
"He's not snarling, he's sneezing!"

This is one of my new favorites. I can just imagine him being forced into a limo with paparazzi shutters clicking in this pose. Once he gets in there, he says "I can't believe all this fuss over winning 8 consecutive Masters tournaments, Dad. You would think nobody has ever done that before!?"

He is so darn cute!
This video, while short, is a huge deal. One of the most important functions in a newborn is the latching and sucking function....................both on display here.

And........we're backl

Those that follow this blog every day, first off, thank you!

You have also probably noticed that I have not posted in a couple days. Our computer was on the fritz but is back now so updates will be more frequent again. WHOOO HOOO!

Julie is at the hospital with him as I write this and when she returns I will upload a ton of photos over the last few days. To update, he has been doing great. The doctors decided to try a little different approach with the C-pap and have gradually turned down the pressure to ween him off of it rather than just take it off like they have tried before.

He seems to be liking that method as we are now down to a level of 3 from a level of 5. The level refers to the amount of pressure that is being blown into his lungs to keep them inflated. Eventually he will be weened down to no pressure and then they will try to take the mask off again and see how he does.

If he is somehow attached to the feeling of the mask, we are in trouble as I am sure that kindergarten will not let him through the doors with a C-pap mask on........I am not certain, perhaps Grandma can confirm that notion ha ha.

In any case, things are going well. I am getting better and am going to see him this weekend again! I can't wait!

I love you son and can't wait to see you.

Thank you all for the support, well wishes, and prayers. Blessings on all of us and thank God for all he is doing!

Monday, October 25, 2010

Locked out

UGH!

I went to the doctor today and he basically told me that I was taking a risk in going to the hospital in my condition. He has practically "banned" me for the week and so here I sit, frustrated.

We have no other children. I was not prepared for how the first would impact me emotionally. They say that your children "change your life" and I can tell you that it is far beyond that. Our miracle has changed my life, Julie's life, our families lives, and our whole world.

Being that as it is, you can imagine the brutality of having something go on that prevents you from experiencing everything you can with that child.

So the next few posts might not contain the feeling that the earlier posts have from me. I will still be reporting on his conditions as I will be calling a bunch and Julie will be back and forth to visit.

I can't wait for the next time I get to see him. I am counting the moments son...........see you soon!

Saturday, October 23, 2010

Second verse, same as the first

Nothing new to report inside the incubator.

Outside the incubator, I had a friend of mine help me tile our bathroom and am still sick as a dog. I will be passing out shortly so I will update later if anything arises.

Sorry for the short posts, but I am just beaten up at the moment.

Thursday, October 21, 2010

Nothing but a couple photos

Ok, a couple words. Things went well today. President Obama got out of town in plenty of time for Julie to go see him and take some videos and photos. I was not taking too many chances and decided to take one last day off from subjecting him to my germs. He will not get off so easy tomorrow ha ha!

Either an awesome attempt at a hi-five, or the early stages of a horror flick actor. "ohhhhhhh nooooo not that, not.............THE C-PAP!"
It still looks like her ring could fit over his arm, even though he has gotten a bunch larger.
The blue cuff on his foot is one of the most amazing pieces of medial apparatus he wears. It is a laser that fires from one side to the other and through one of his arteries to measure the level of oxygen in his blood stream. Awesome........laser!

Hope you all enjoy! Have a great night!

Wednesday, October 20, 2010

The big question............answered

Well sort of answered!

First, a quick update. He is doing well. He has had more "incidents" again and so they are going to keep working to find out what is going on in his body that makes him do this when he is off the C-pap.

I wish there was more to update, but like it has been said before, "no news is good news" when it comes to these things.

So...........the question. This has been posed to us a bunch so I figured we would cover it here and let everyone know the "checkilist" needed to fulfill the question of "when will he be able to go home?"

In most cases, as we have been told, babies that are born premature are held until their original due date. This to make sure that all vital functions develop properly such as lung development, brain, heart, kidney, etc.

Babies are developing in the womb almost all the way up to birth. The last thing to develop is the lungs. Since babies do not need to breathe in the womb, the lungs are not vital immediately and, thus, do not develop in full early on.

So, typically, premature babies lung functions are the most underdeveloped and are monitored closely to ensure that babies will be able to breathe normally when they go home.

Which brings me to the question, "When will he be able to go home?"

The stock answer is sometime around late December (since that was his original due date, Dec. 25th). The medical answer is a bit more difficult. A variety of people have asked how much weight he has to gain to go home and I can tell you that weight has very little, if anything, to do with it.

The "checklist" for "checkout" is as follows;

1) He has to be able to breathe on his own. No help from C-paps, no oxygen all night, his lungs have to function naturally. To this point, he has not been able to do this for stretches of more than a few hours and he must go 5 complete days with out one single apnea episode before we can cross this one off the list.

2) He must be able to hold his own body temperature. So far he is doing this very well.

3) He must be able to eat on his own. While he has kept food down, he is still being fed through a tube into his stomach. The doctors are very optimistic that when the time comes, he will be able to eat on his own. This means that he will have to be able to perform the "sucking" technique to take milk from a nipple, be it a bottle or a breast.

4) He must be able to sleep on his back. To this point, the doctors and nurses rotate him from belly to back. While it is widely considered a terrible thing to put a baby on their belly, because he is so closely monitored, he can sleep on his stomach with close supervision. It does seem that he does not do as well with his breathing on his back so the nurses default him to his stomach if he has a few episodes in a row, but he seems to be able to do this if need be. Again, it will be in time that he will be able to do this with no issue at all.

So there you have it. Those are the check points that he will have to clear to be sent home to us. He can weigh anything at all, but most likely, they say he will be in the 4 or 4 1/2 pound range when he can do all these things.

I hope that clears things up and gives you all some perspective when we talk about how things are going. All signs point to late December and a wonderful Christmas with our family in tact, but his progress is in the hands of God. We would sure like it to be today that he comes home, but we can not properly care for him the way he requires.

Well, if any questions arise, please feel free to put them in the comments and I will do all I can to answer them. For now, bedtime. We will see him later tomorrow as President Obama is in town and is speaking right down by the hospital. The area will be on lockdown for a large portion of the day.

I will report back tomorrow night!

Tuesday, October 19, 2010

Looking in

So while I called in sick to work and sat at home, Julie went down to the hospital and got some of the best photos yet.

He is doing well today and there are no major updates, so on to the photos!

You gotta love the tonuge!

Talk to everyone tomorrow. I am hoping I can go back to work tomorrow and see him on Thursday once I am symptom free for 24 hours.

Have a great night everyone!