Today was a bit of a poor day. He was real fussy all day and was not loving life too much. He was receiving a blood transfusion while we were there so maybe that was enough to set him off.
He is also having more and more "episodes" of apnea where his body just "forgets" to breathe and has to be reminded. The nurses are very gentle to rub his back or wiggle his feet to remind his body that it needs to breathe. At any rate, he has this issue daily, but today there was a marked increase in the incidents.
They are going to monitor that and see if he needs to be put back on the C-pac.
I will keep you all posted. For now, we are off to bed. We are both beat.
Here are a few photos to tide us all over for a day or so;